Name: The Law and Ethics of Data Sharing in Health Sciences
Price: 156.41 EUR
Availability: InStock
Author: Kathleen Liddell;Timo Minssen;Mateo Aboy;Mark Fenwick;Marcelo Corrales Compagnucci
ISBN: 9789819965427

portada The Law and Ethics of Data Sharing in Health Sciences

The Law and Ethics of Data Sharing in Health Sciences

Formato

Libro Físico

Editorial

Springer Verlag, Singapore

Autor

Kathleen Liddell;Timo Minssen;Mateo Aboy;Mark Fenwick;Marcelo Corrales Compagnucci

Colección

Perspectives in Law, Business and Innovation

Año

2025

N° páginas

200

Encuadernación

Tapa Blanda

Dimensiones

23.50 x 15.50 cm

ISBN13

9789819965427

The Law and Ethics of Data Sharing in Health Sciences

Kathleen Liddell;Timo Minssen;Mateo Aboy;Mark Fenwick;Marcelo Corrales Compagnucci (Autor) · Springer Verlag, Singapore · Tapa Blanda

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Reseña del libro "The Law and Ethics of Data Sharing in Health Sciences"

Data sharing – broadly defined as the exchange of health-related data among multiple controllers and processors – has gained increased relevance in the health sciences over recent years as the need and demand for collaboration has increased. This includes data obtained through healthcare provisions, clinical trials, observational studies, public health surveillance programs, and other data collection methods. The practice of data sharing presents several notable challenges, however. Compliance with a complex and dynamic regulatory framework is essential, with the General Data Protection Regulation being a prominent example in a European context. Recent regulatory developments related to clinical trial transparency, trade secrecy, data access, AI training data, and health data spaces further contribute to the difficulties. Simultaneously, government initiatives often encourage scientists to embrace principles of “open data” and “open innovation.”The variety of regulations in this domain has the potential to impede widespread data sharing and hinder innovation. This edited volume, therefore, compiles comparative case studies authored by leading scholars from diverse disciplines and jurisdictions. The book aims to outline the legal complexities of data sharing. By examining real-world scenarios from diverse disciplines and a global perspective, it explores the normative, policy, and ethical dilemmas that surround data sharing in the health sciences today. Chapter Patient Perspectives on Data Sharing, Chapter Supplementary Measures and Appropriate Safeguards for International Transfers of Health Data after Schrems II are available open access under a Creative Commons Attribution 4.0 International License via link.springer.com.